Welcome ))))))))))))))))))))))))))))))))))))))))))))
Welcome to RE(ACT) – Rare Disease Research Congress, the leading event in rare disease research. From March 10–12, 2027, we will gather in Budapest for three days of inspiring science, meaningful dialogue, and cross-sector collaboration.
Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition), RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders, renowned experts, and emerging talents from across disciplines to share breakthrough results, challenge ideas, and help shape the research and policy landscape that will accelerate progress in rare diseases.
True to the spirit of RE(ACT), patients, families, and advocacy organizations are integral to the Congress. Their lived experience strengthens discussions, grounds priorities in unmet needs, and helps ensure that research advances translate into tangible benefits for people living with rare diseases.
Since its launch in 2012, RE(ACT), initiated by the BLACKSWAN Foundation, has promoted scientific exchange and encouraged collaboration in rare and orphan diseases. Working with stakeholders in the rare disease community, RE(ACT) demonstrates a shared commitment to overcoming challenges through collective effort, open collaboration, and knowledge sharing. The 2027 edition is co-organized by the European Rare Diseases Research Alliance (ERDERA) and the International Rare Diseases Research Consortium (IRDiRC), in partnership with EURORDIS (Rare Disease Europe) and Rare Disease International (RDI).
Join us in Budapest as we advance discovery, strengthen partnerships, and build momentum toward a future where rare diseases are no longer barriers—but frontiers we can overcome, together.
Sessions ))))))))))))))))))))))))))))))))))))))))))))
Wednesday, 10 March
- 10:30–13:30
Session A
Discovery, diagnosis, and disease understanding
- 14:30–17:30
Session B
Therapeutic modalities and translational science
Thursday, 11 March
- 09:00–12:30
Session C
Clinical trials and evidence generation for small populations
- 14:00–17:30
Session D
Access, policy, and health systems
Friday, 12 March
- 09:00–12:00
Session E
Care delivery and lived experience
- 13:30–17:00
Session F
Data, platforms, and infrastructure
Registration ((((((((((((((((((((((((((((((((((
Early registration:
(opens April 2026) before June 30, 2026
Standard registration:
between July 1 and December 31, 2026
Late and on-site registration:
from January 1 to February 28, 2027
Abstract submission deadline:
January 31, 2027
Registration fees (prices are in Euro):
(payment by credit card with Stripe is charged with a fee of 3,5%)
| Early | Standard | |
|---|---|---|
| Regular attendee | 400 | 500 |
| ERDERA & IRDiRC Members* | 350 | 400 |
| Students/Postgraduate Trainees** | 300 | 350 |
| Patient organization representative*** | 250 | 300 |
| Company | 600 | 750 |
* Our conference secretariat will verify your membership (applicable only for public/not-for-profit institutions).
** Please e-mail a copy of a Student’s ID or a confirmation signed by the department head at the time of registration. Confirmations handed in at a later stage cannot be considered.
*** Please e-mail a confirmation signed by the head of the organization at the time of your registration. Confirmations handed in later cannot be considered.
Prices are in Euro (payment by credit card with Stripe is charged with a fee of 3,5%)
The registration fee includes:
To register for RE(ACT) 2027, you will be redirected to our registration provider, registration.solutions. You will be asked to create an account (if you don’t already have one from a previous edition), which is used to manage your registration and payment securely, and to make registration easier if you attend future events on the same platform.
Creating an account does not automatically enroll you in marketing or general communications. You can choose which communications you wish to receive, and you can update or withdraw those preferences at any time.
Your personal data will only be processed for the purposes explained in the privacy notice, including managing your registration, payment, event participation, and any optional communications you choose to receive.
Speakers ))))))))))))))))))))))))))))))))))))))))))))
Support RE(ACT) ))))))))))))))))))))))))))))))))))))))))))))
The RE(ACT) 2027 is a prestigious global event dedicated to advancing research and innovation in rare and orphan diseases.
This unique gathering brings together leading scientists, healthcare professionals, policymakers, and patient advocates to share knowledge, collaborate on groundbreaking research, and inspire the next generation of medical advancements.
By sponsoring this unique congress, your organization will play a vital role in shaping the future of rare disease treatment and research while gaining unparalleled visibility and engagement opportunities.
